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[personal profile] trystinn
I come from a family with both Lupus and Diabetes in their genetic mix. I've been diagnosed with both, though we only treat for Diabetes in my case (I refused the steroid treatment after it made me sicker than Lupus did). I mention this because finally a drug has been found to specifically treat Lupus.

Benlysta may be the miracle treatment we've been waiting 100 years for.

Someone alert Dr. House.

Date: 2009-08-24 10:06 pm (UTC)
From: [identity profile] dana3.livejournal.com
Please don't get ANYbody's hopes up until it's been out in the general populace for a couple years and we can see what it actually does or doesn't do. Watch it, yes. Advocate for it? Mmmmmmm not if you really love her.

Remember when I was doing computer networking? I'd occasionally comment that certain errors didn't appear until you had a network of a certain size and complexity -- and only THEN would certain conflicts become apparent. Same with drugs -- these clinical trials are in controlled situations. Let's see what happens when it gets out there in the real world -- and then let's give it time enough for the lump under the rug to become apparent -- before recommending it for anyone you love. Contrary to the current advertising blitz, Celebrex really WAS implicated in far more mortality/morbidity than other NSAIDs ...

Yours from the medically conservative side of the aisle -- :D

Date: 2009-08-24 10:26 pm (UTC)
From: [identity profile] keastree.livejournal.com
This.

Trials for drugs and vaccines sample such a small portion of the population and don't necessarily assure either effectiveness or safety in the general population. Think about all the outright experimentation that has been done on people with CFIDS and Fibro over the years...and wait.

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